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CDKL5 UK is a small charity dedicated to supporting individuals and families with a diagnosis of CDKL5 Deficiency Disorder (CDD).

We do this by:

• sharing relevant and up to date information about the condition
• organising face-to-face family days, and online events
• delivering training for health and social care professionals
• supporting patient participation in the latest clinical trials
• providing a platform to empower individuals and families to be involved in the design and implementation of research projects, using their lived experience to help others on a similar journey

Our Mission is to provide help and support to individuals and families affected by CDD. Our Vision is a world in which CDD and its effects are overcome by way of effective treatments and ultimately, a cure.

Visit CDKL5 UK website for more information.

Just4Children provide fundraising support to families for the medical needs of their children with disabilities and sickness.

We provide fundraising support for families in these areas:

• Life changing treatment for children with brain injuries
• Access to quality of life enhancing surgeries and treatments like selective dorsal rhizotomy (SDR) and stem cell therapy
• Access to life-saving surgeries and treatments
• Probable and likely surgeries and treatments as yet not diagnosed
• Short breaks and holidays for children with families fighting illnesses and disabilities
• Creating dreams for terminally ill children
• Mobility and sensory equipment
• New technology to enhance quality of life for house bound children
• Holistic therapy and support programmes for autistic children
• Adaptions to homes and living environments to improve quality of life - widen doors and install ramps, improve access to rooms and facilities - eg stairlifts, accessible showers, bathrooms or toilets, therapy room
• Sports equipment to enable talented disabled athletes to participate in competitive sport
• Service dogs for children with epilepsy and other conditions.

And any other areas the trustees feel will benefit children who have disabilities and sickness.

Visit Just4Children website for more information.

There is a critical funding gap in children and young people's healthcare in the UK & Ireland. The current healthcare system is not able to deliver everything our families need it to - that is where Tree of Hope steps in.

We help families raise money for medical treatments and healthcare services not freely available to them through the NHS and social care. Tree of Hope provides families with ongoing support, charitable benefits, advice and regular check-ins. We develop a detailed fundraising action plan and guide them through the process to help them reach fundraising goals more quickly.

Visit Tree of Hope website for more information.